Jill Daum, at the Belfry theatre in Victoria. (Jonathan Hayward/The Canadian Press)

Alzheimer’s story from wife of Spirit of the West singer takes stage

Jill Daum, wife of musician John Mann, writes ‘Forget About Tomorrow’, playing now in Victoria

Jill Daum says writing a play about a family’s struggles with Alzheimer’s helped her get out of bed some days as she fought to accept her husband’s diagnosis of the cruel disease.

Daum is married to musician John Mann, the driving force behind the Canadian band Spirit of the West, who was diagnosed with early-onset Alzheimer’s almost six years ago and now, at age 55, lives in a care home.

“Forget About Tomorrow” opened Jan. 25 at Victoria’s Belfry Theatre and is scheduled to run until Feb. 18. It is also scheduled to start March 1 at Vancouver’s Arts Club Theatre.

“The story is fictional but it was certainly inspired by what I learned from living with John. What I learned as a caregiver and what I’ve had to watch him go through,” said Daum in an interview hours before the opening night performance.

READ MORE: Making music, with John Mann

READ MORE: John Mann shows indomitable spirit in new documentary

She said Alzheimer’s takes its toll on more than just the individual with the disease. It ransacks families and the play explores the decline of a family and couple as the disease slowly gnaws at long-standing bonds, she said.

“It’s about the wife who’s married to the person who gets the diagnosis and how it affects her and her family, and her path to accepting what her life will be,” Daum said. “She goes down a few rabbit holes … and eventually comes to a place of acceptance.”

Daum, who was rewriting lines right up until opening night, said the play evolved during sessions at a women’s writing workshop in Vancouver. She said she didn’t tell anybody about her husband’s diagnosis and the foundation of the play emerged during those gatherings.

“I started to write scenes about a woman whose husband had early-onset and nobody in the group knew John had it,” said Daum. “They were really impressed with my knowledge about the disease. I got to talk about what it was like for a caregiver. I got to do all of that without anybody knowing it was actually about me.”

“Forget About Tomorrow” is Daum’s first solo project, though she has collaborated on other plays.

She said Mann is not able to attend the Victoria performances.

“We’ve just gone through a really rough patch with him. But he’s still beautiful Johnny. He’s still snapping his fingers. There’s a lot of love for John in this show.”

She said Mann often helped her read lines in the scenes and he contributed two songs to the play.

The songs, “Forget to Forget,” and “Tom’s Song,” are the last songs Mann has written. The play opens and closes with the songs.

Daum said the play is an emotional roller-coaster, humorous and moving, as the family attempts to cope with upheaval in their lives. The performance arrives at a crossroad, where actor Jennifer Lines, who portrays the wife and caregiver, meets a new man and confronts a difficult decision.

“The dilemma is should Jane take it or stay with her husband when we all know in two years he won’t remember her name,” she said.

Daum said her personal road to acceptance of Alzheimer’s has been difficult, especially since the journey is continuing to its ultimate end.

“I will have a life past Alzheimer’s and John won’t. It’s hard for everybody,” Daum said.

Dirk Meissner, The Canadian Press

Just Posted

Local climber headed to Russia for World Championships

A fundraiser is being held this week to help send TJ Foley to Russia.

Kimberley Transfer Station remains closed, plans for partial re-opening in the works

The RDEK hopes to re-open the recycling areas, place some temporary bins for disposal of garbage.

Focus Meat Draw donates $500 to Spark Youth Society

Joan Jobe (right) is pictured pictured donating $500 to Chelsie Tierney (left)… Continue reading

Fuels Management project underway in Forest Crowne

For resident and contractor safety, trail access will be limited at times.

Kimberley Transfer Station to remain closed until further notice

The Transfer Station was extensively damaged in an overnight fire on Friday.

Watch: Spartan Race at Kimberley Alpine Resort

This weekend the Spartan Race took place at Kimberley Alpine Resort. Participants… Continue reading

Temperature records break across southern B.C. as heat continues

Whistler broke a 70-year-old record high of 32.2 C with a temperature of 32.9 C

No injuries in house fire near Jaffray

Firefighters respond to fire sparked by a rechargable battery that ignited on Monday night.

Hawaii volcano boat tours continue after ‘lava bomb’ injuries

“An explosion occurred near the shoreline hurling hot lava rocks towards the boat and injuring several passengers.”

Trump returns from summit with Putin to forceful criticism

“Shameful,” ”disgraceful,” ”weak,” were a few of the comments. Makes the U.S. “look like a pushover,” said GOP Sen. Bob Corker of Tennessee.

Obama to deliver Mandela address in likely rebuke to Trump

Former U.S. President Barack Obama Monday praised Kenya’s president and opposition leader for working together but said this East African country must do more to end corruption.

Trudeau asks transport minister to tackle Greyhound’s western pullout

Prime Minister Justin Trudeau says he’s asked Transport Minister Marc Garneau to find solutions in Greyhound Canada’s absence.

Leads sought in whereabouts of Serval cat

It’s been four days since the disappearance of a Fernie resident’s beloved… Continue reading

Trudeau’s youth council divided over Trans Mountain pipeline purchase

A letter signed by 16 past and present members was made public today, asking the federal government to reverse course

Most Read