Tavia Marlatt refused to leave the hospital until she has an at-home care plan. Submitted photo

B.C. epilepsy patient ends sit-in, awaits answers

Tavia Marlatt and her mother, Renee, met with Fraser Health officials on Friday, April 5.

After refusing to leave Vancouver General Hospital until her health care needs were met, Langley’s 22-year-old Tavia Marlatt is a step closer to receiving what she needs.

Tavia suffers from epilepsy, and can have anywhere from six to 50 seizures a day. Last week, she was at VGH undergoing a series of epilepsy tests that revealed she’s been having seizures from three parts of her brain.

READ MORE: Langley epilepsy patient refuses to leave Vancouver hospital until needs are met

Through a YouTube channel, Tavia documented her stay at the hospital, and said she was refusing to leave the hospital until she was given at at-home care plan.

“Basically, what the plan is, is stay here until my needs are met or the police come,” Tavia explained in a YouTube video.

Fortunately, officials from Langley Memorial Hospital agreed to meet with Tavia and her mother, Renee, last Friday to discuss health care options.

Renee explained the family has been asking the Fraser Health Authority for in-home care support at their family home since Tavia turned 19. She said there is a gap in funding from when children age out of school, and become adults.

Prior to the meeting, Renee said Fraser Health has repeatedly denied funding for in-home care, and has instead suggested Tavia live in a group home.

“We want funding released to have staff at home,” she added.

On the same Friday, Tavia agreed to leave the hospital on “good faith” that long-term funding will soon be provided.

Tavia was diagnosed with epilepsy at age seven, and the severity of it increased when she was eleven.

According to Renee, Tavia’s condition was more manageable when she was school-aged, because the family had the support of her being at school during the day, with people who could administer medications if needed.

Since becoming an adult, the medical system has failed Tavia, according to Renee.

“She needs support to be successful, and hasn’t been given the opportunity to be successful, and that’s hard to see. She [Tavia] says, ‘It’s hard to connect and make friends because they’re too independent for me.’ It’s hard to watch her suffer.”

Renee confirmed there is now short-term funding in place.

After Friday’s meeting, Renee said there is now a proposal for long-term services being drafted, and she is hoping to find out more information by the end of this week.

“They [Fraser Health] recognized there’s a gap in services,” added Renee.

“This isn’t just for Tavia, it’s for any person with epilepsy.”

Fraser Health confirmed they met with the Marlatt family.

“We continue to have ongoing conversations and work on a plan to support the patient’s needs,” Fraser Health said in a statement.

Currently Renee is unsure what type of funding they will receive, but hopes it will be long-term funding to access Choice in Supports for Independent Living (CSIL) – a self-directed home support services program.

“The benefit of having individualized funding is you can customize those supports to be responsive and flexible to a person,” added Renee.

Ideally, Renee is hoping for an in-home support system that is able to administer Tavia’s medications, bring her out into the community, and take her to activities such as her volunteer job.

This would also allow Renee to go back to work, since she wouldn’t have to stay home to care for Tavia herself.

“We’re very hopeful those supports will be in place. As a parent, it’s been really encouraging to see her [Tavia] taking a strong role and lead in advocating for people with epilepsy.”

Renee emphasized her and Tavia’s advocacy isn’t just for their own family needs.

“Our goal is that this isn’t just something for Tavia. Hopefully it will further support change for people with epilepsy or invisible disabilities.”

_________________________________

Is there more to this story?

Email: miranda.fatur@langleyadvancetimes.com

Like us on Facebook or follow us on Twitter

_________________________________

Get local stories you won't find anywhere else right to your inbox.
Sign up here

Just Posted

Interior Health officials outline pandemic response in virtual town hall

Kelowna-Lake County MLA Norm Letnick moderates digital discussion, Q&A with Interior Health leadership

MP Morrison touts non-partisan effort to provide relief amid COVID-19 pandemic

The federal government has announced a slew of economic initiatives for those impacted by the pandemic

Local business provides first responders with 22 bottles of hand-sanitizer amid shortages

By: Jesse Heinrichs A hand-sanitizer shortage has hit some of the people… Continue reading

Veterinary clinics considered essential services, continue to help animals

The B.C. government recently released an official list of businesses that are… Continue reading

B.C. COVID-19 contact restrictions working, Dr. Bonnie Henry says

’Not out of the woods yet’ as next two weeks are critical

Earth Hour 2020 kicks off online Saturday night

Action moves online due to COVID-19

B.C. COVID-19 cases rise 92 to 884, one more death, 81 in care

Outbreak action underway in 12 long-term care homes

B.C. veterinarians want to smooth the fur of COVID-19-worried pet owners

Vets expect to continue giving your fur buddies the help they need while social distancing

B.C. VIEWS: Small businesses need our help

Just as integral in neighbourhoods in Vancouver and Surrey as they are in Prince George or Kelowna

‘Tremendous’ response from blood donors has supply keeping pace with demand

About 400,000 of Canada’s 37 million residents give blood on a regular basis

Morning world update: Cases surge past 600,000; positive news in Germany

Spain suffers its deadliest day as Germany considers April 20 to possibly loosen restrictions

VIDEO: Penguins roam empty halls of Vancouver Aquarium

COVID-19 has forced the Vancouver Aquarium to close access to guests – leaving room for its residents

Most Read