Five-year-old Bayne Krause poses for a photo with his mom Marianne. Bayne’s shirt reads, ‘I have Cystic Fibrosis. Help keep me healthy, please social distance.’ Photo: Laurie Tritschler

Five-year-old Bayne Krause poses for a photo with his mom Marianne. Bayne’s shirt reads, ‘I have Cystic Fibrosis. Help keep me healthy, please social distance.’ Photo: Laurie Tritschler

West Kootenay mom promotes awareness of cystic fibrosis

Marianne Krause wants people to know what it’s like for her five-year-old son to live with CF

A Grand Forks mother is promoting awareness of Cystic Fibrosis (CF) on behalf of her afflicted son.

Over 4,600 Canadians live with CF, a genetic disease that causes chronic lung infections among sufferers, most of whom are children, according to Cystic Fibrosis Canada. Five-year-old Bayne Krause is one of them.

READ MORE: Make-A-Wish: Hillary, 17, goes on dream shopping spree for horse gear

READ MORE: B.C.’s ‘extremely medically vulnerable’ can begin booking COVID-19 shots

Popular misconceptions about the disease are a constant source of frustration for parents like Bayne’s mom, Marianne.

On the one hand, Marianne says people commonly mistake Bayne’s persistent coughing and sweating — the hallmarks of CF — for COVID-symptoms. Bayne does not have COVID, nor is he infectious to others, she told The Gazette.

“My son coughs a lot because he needs to clear his lungs. He is not contagious,” she explained.

On the other hand, she said that people frequently take issue with her vigilance around Bayne’s health. Unlike most five-year-olds, Bayne has to wear a face mask. And he relies on other people not only to wear their face masks, but also to maintain social distancing around him — even though he is almost irresistibly cute.

Kids like Bayne can’t risk getting sick, but it happens. Marianne said it’s touch and go when it does, which is why she said Bayne was rushed to Trail Hospital when he came down with a cold last June. Bayne doesn’t need a fever on top of his condition: His lungs are congested at the best of times, just as his constant sweating leaves him perennially at risk of dehydration.

Most people’s lives don’t revolve around these hard truths, so Bayne literally wears them on his chest.

“I have Cystic Fibrosis,” his T-shirt reads, “Help keep me healthy — please social distance.”

Bayne and his family have gone to great lengths to keep him safe. He hasn’t attended school since the pandemic, Marianne said.

Marianne is asking people who meet Bayne to please respect her and step-dad Charlie’s wishes. Understand that they are taking all the necessary precautions to safeguard his health.

Bayne likes playing disc golf. He likes playing games on his tablet. He likes doing all the things you’d expect most five-year-olds would enjoy. But he needs to take all necessary precautions to stay safe; so that, when the pandemic lifts, he can go back to living his best life.

May is Cystic Fibrosis Month. Marianne and Charlie are asking people to consider wearing the signifying purple ribbon on May 26.

For more information about CF, please consult Cystic Fibrosis Canada’s website at cysticfibrosis.ca.

Grand ForksHealth

Just Posted

A tent housing a mobile vaccination clinic. (Interior Health/Contributed)
Over 5K jabbed at Interior Health mobile COVID-19 vaccine clinics

The clinics have made stops in more than 40 communities since launching last week

Kimberley residents were treated to the first Farmers' Market of the season, and the feeling of a return to normalcy. Paul Rodgers photos.
WATCH: Kimberley’s first Farmers’ Market of the season

Kimberley residents enjoyed the first Farmers’ Market of the year on Thursday,… Continue reading

Provincial Health Officer Dr. Bonnie Henry talks about B.C.’s plan to restart the province during a press conference at Legislature in Victoria, Tuesday, May 25, 2021. THE CANADIAN PRESS/Chad Hipolito
Interior Health COVID-19 cases falling slower than the rest of B.C.

More than a third of provincial cases announced Thursday came from the Interior

Students at Creston Valley Secondary School put together an art installation of a replica residential school room. (Photo by Kelsey Yates)
Creston students create art installation of residential school room

The replica was decorated with a small bed, school uniform, and notes written with pleas for help

A small pod of Pacific white-sided dolphins pass by close to shore in Campbell River June 16, 2021. Still capture from video courtesy of Kimberly Hart
VIDEO: Dolphin sunset captured from Vancouver Island shore

Spectacular setting for view of travelling pod of Pacific white-sided dolphins

BC Lions running back John White IV (3) runs with the ball during first quarter CFL football action against the Ottawa Redblacks in Ottawa on Saturday, September 21, 2019. THE CANADIAN PRESS/ Patrick Doyle
BC Lions file trademark for new logo

Canadian Football League team files for new design on June 1

The remains of the Mid-Island Co-op in Whiskey Creek along the Alberni Highway on Friday, June 18, after a blaze the day before devastated the gas station. (Michael Briones photo)
VIDEO: Camper van explosion burns Vancouver Island gas station to the ground

Nine fire departments responded to the incident, no injuries reported

The Montreal Police logo is seen in Montreal on Wednesday, July 8, 2020. Some Quebec politicians are calling for an investigation after a video was released that appears to show a Montreal police officer with his leg on a young Black man’s neck during an arrest. THE CANADIAN PRESS/Paul Chiasson
Probe called for after video appearing to show Montreal officer’s knee on Black youth’s neck

Politicians call for investigation after clip evokes memories of George Floyd incident

A vial of AstraZeneca vaccine is seen at a mass COVID-19 vaccination clinic in Calgary, Alta., Thursday, April 22, 2021. The website for a Broadway theatre showing "Springsteen on Broadway" said it would only allow guests "fully vaccinated with an FDA-approved vaccine" — Pfizer-BioNTech, Moderna or Johnson & Johnson. THE CANADIAN PRESS/Jeff McIntosh
No Springsteen for you: AstraZeneca not good enough to qualify for Broadway ticket

Victoria area mayor among those unable to attend New York entertainment due to COVID-19 restriction

Join Black Press Media and Do Some Good
Join Black Press Media and Do Some Good

Pay it Forward program supports local businesses in their community giving

The BC Ferries’ website is down for the second time in one week from what they say is likely an overwhelming increase in web traffic. (Black Press Media file photo)
Surging web traffic crashes BC Ferries’ site again

Website down for second time this week

John Furlong told the Vancouver Board of Trade on Feb. 20, 2020 that he thinks the city could and should bid for the 2030 Winter Games. (CP photo)
PODCAST: John Furlong lays out a ‘provincial’ B.C. plan to host the 2030 Winter Olympics

Podcast: Chat includes potential role for Vancouver Island communities

The pilot of this single-engine propeller plane was unhurt after crash-landing in a Como Road orchard Friday, June 18. Photo: Laurie Tritschler
Plane crash lands into Grand Forks orchard, pilot injured

RCMP have secured the crash site, pending investigation by Transport Canada

Most Read